Grace's Story

Written by Mum Allyson.

Grace was my fifth pregnancy, having had one miscarriage at 12 weeks in between my first two children. I had three sons; 5 Β½, nearly 3 and 15 months when Grace was born. My pregnancy had been difficult with regular bleeding and a hemorrhage at 18 weeks where I felt I had lost my baby but scans showed that I still had a fetus. 

Grace when she arrived at King Edward.

Grace when she arrived at King Edward.

I was on the last day of 23 weeks when I felt strong pains in the evening. I went up to the Albany Hospital and they gave me Ventolin to stop the labor. Initially I didn’t realise it was labor as I was induced with my boys. That seemed to settle so by 9am the next day when my husband, Richard, bought the boys to see me, everything seemed to be okay. By Midday my labor had progressed remarkably and I was being prepped to fly to King Edward as they thought the baby would be born soon. 

We were transferred to the awaiting Royal Flying Doctors airplane. The engines were going and Richard was being strapped in when my waters broke. The RFDS Midwife made a lifesaving call when she said I would be transferred by ambulance back to Albany Regional. It took them a very short time to get me back to the hospital when Grace was born encaul at 3pm on November 26 1997. She was just 24 weeks gestation and a very tiny little girl (585gms). The three doctors and one midwife decided to do everything they could to support her survival as they have since told me that she looked strong and healthy enough to try.

The hospital was not equipped for such a tiny infant and a friend has told me that all available staff were called to cut down tubes to help with her survival. There was no ventilator, so when they had successfully intubated her my GP spent just under six hours hand ventilating her. They called the Neonatal team who arrived by RFDS just before 9pm who stabilised her, which took quite a while and then flew her up to KEMH. I was told that up to 4 aircraft were involved in her birth and transfer. Regional families could not survive without the RFDS.

Grace spent 10 weeks on a ventilator and took two months to reach one kilogram. She was discharged after 4 Β½ months from the nurseries at KEMH in April 1998.

This year she turns twenty and has done incredibly well. She graduated high school last year and is currently working at Bunnings for a Gap Year before she goes to Perth to study Social Work. Her plan is to work with the families of Pre-mature babies at King Edward or Princess Margaret.

I support Tiny Sparks WA and all the work they do because I have walked the journey of having a baby prematurely without support and being from the country it is even more isolating. I would have loved to have the nurture and encouragement that they offer to families when we were going through the difficulties that only those who have been through it can understand.


We welcome families sharing their stories on our blog.  If you would like to share your story please send approximately 500 words and a few photographs to admin@tinysparkswa.org.au with the subject 'Family Story'.

Tiny Sparks opens Red Bubble store

We are excited to announce that we have opened a Red Bubble store.  Tiny Sparks receives a commission from each sale and the art work has been generously donated for our use.  With everything from t-shirts to canvas prints and travel mugs on offer there is something to make the perfect gift for anyone!  Here is a sneak peak of a few of the designs, to see all that we have on offer click through to our Red Bubble store.  Spread the word far and wide.

Tiny Sparks in the News

Special thanks to GWN for their news story this week!

Whilst the major neonatal units are located in Perth we support families state wide.  Travelling to Perth, often in an emergency situation can be daunting.  It's important for families to know that we are there for them, both emotionally through our peer-to-peer support network and tangibly through our care package program, providing them with essential items they will need for their hospital stay.

With almost 4,000 babies admitted to neonatal units around WA each year Tiny Sparks WA plays a pivotal role.  To help us continue to support those families, please join our end of financial year challenge of funding '30 care packages in 30 days' (All donations over $2 are tax deductible, a receipt will be e-mailed immediately.)

You can watch the GWN news story via their website here.

30 Care Packages in 30 Days!

The end of financial year countdown is on!

Each year we distribute more than 700 care packages. We would love for you to make an end of financial year donation and sponsor a care package! Each care package is provided with a personalised message from the donor, you can leave your message when making the donation. A receipt will be e-mailed to you for taxation purposes immediately.

Help us achieve our goal of sponsorship of 30 care packages in 30 days, that's 1 for each day of June.

Thank you!

That's a wrap! HBF Run for a Reason 2017

We are so grateful to Premo, Lyn, Jacquieline, team 'Lenny the Lion', team 'The Race for Chase', the Bates Family and everyone else who turned out to pound the pavement for Tiny Sparks WA, 50+ people in total, what an effort!

Almost $4,000 was raised for Tiny Sparks from this event, all of which will be returned to the WA community through our ongoing programming.  As a 100% volunteer run organisation every dollar is spent where you intended for it to go!

Wondering just what impact $4,000 will have?  It buys 100 care packages (we distribute more than 700 a year!), or 3 terms of Developmental Playgroup (12 placements each term), or 400 special occasion gifts (we provide a small gift on Mother's Day, Father's Day and Christmas Day to all babies in neonatal units around WA).  What a huge difference you are helping us make!

Thanks to HBF for putting on another fabulous Run for a Reason and to Channel 9 for their support of the event, especially with their TV special 'Be the Reason', featuring the Catalano family and team 'Lenny the Lion'.  We can't thank you all enough!

#hbfrun #bethereason