Every Week Counts Showcase Canberra

Recently Amber travelled to Parliament House, Canberra for the Every Week Counts Showcase. She was honoured to be the opening speaker of the event to discuss The Power of Consumers in the Collaborative. Amber has been a member of the Consumer Advisory Group since it’s inception and has been working with the WA groups for many years. More than 300 people attended this event from 65 hospitals all over Australia.

The Collaboratives initiatives for safely lowering the rates of earlyterm and preterm birth can be found here. So far participating hospitals have seen a marked improvement in their rates of earlyterm and preterm birth but there is still a lot of work to do! We are hopeful that future funding will enable more hospitals to participate in the program in the future.

Infant & Early Childhood Social & Emotional Wellbeing

Researchers from the Child and Adolescent Health Service and Telethon Kids Institute need your help. They are seeking ways to improve the experiences of families seeking support for their young child’s social and emotional wellbeing.

PREDICTOR Study

This is an excellent opportunity for anyone trying to conceive. Please reach out to Dr Matthew Payne directly if you would like more information.

Follow Up Guidelines for Comment

We’ve been working with a big team of people from all over Australia to write a new Guideline for Follow-up Care for Young Children Born Very Preterm. We know they are at increased risk of life long challenges and we also know that early intervention is critical. Unfortunately there has been no uniform approach to follow-up programs around the country. This new Guideline hopes to change that.

The Guideline is now in Draft phase and open for public comment. We welcome all people born prematurely, caregivers, clinicians, allied health professionals and other interested parties to reach the Guideline and provide feedback. More information can be found here:

Preterm Lung Health Consensus Workshop

Would you like to take part in the final stages of establishing the community’s Top 10 research priorities for the lung health of people born prematurely?

The Children’s Lung Health Team at Telethon Kids Institute invite you to take part in their Consensus Workshop on 3 December at Telethon Kids Institute, Perth Children’s Hospital. At the worskhop you will be involved in selecting and ranking the Top 10 research questions/themes that were identified in the Preterm Lung Health Research Prioritisation Survey.

If you were born prematurely, care for someone born prematurely, are a family member of someone born prematurely, or are a health professional with an interest in the lung health of people born prematurely, we encourage you to be involved.

Simply register your interest in attending here:

https://curtin.au1.qualtrics.com/jfe/form/SV_6A3NthV30CCcpRc?fbclid=IwAR0mOgRQ2-Voq-Tx1jkSpYKAiC95EDLgTks4r8snFaVC5PwdrCS-NE9c0Fs

Refreshments will be provided, and travel expenses will be covered.

Thank you for considering this important opportunity.