We were delighted to attend the launch of CONNECT at Telethon Kids Institute this evening.

We heard from Anne McKenzie about her vision for consumer engagement and the CONNECT program. Prof Jonathan Carapetis Executive Director explained he knew from the start how essential it is to partner with consumers. Prof Fiona Stanley shared her extensive experience connecting with consumers and how she began a SANDS group in her lounge room.

Catherine Hughes shared a consumer perspective, her story and the mutual benefit she has gained by being involved with Telethon Kids. Cath was the first to join CONNECT and sign the member agreement.

Closely followed by our Cofounder Amber. Amber contributes to Telethon Kids as Chair of the Preterm Consumer Reference Group, on the Steering Committee for the Wal-yan Respiratory Centre and in other working groups ensuring the views of the preterm community are heard. She works closely with Co-Head of the Children’s Lung Health Team Dr Shannon Simpson, pictured.

We wish to congratulate Telethon Kids on the launch of this truly incredible program and we encourage everyone interested in research to sign up. They are to be commended for their efforts to engage consumers, listen deeply and change the future so we can all raise happy, healthy kids!