Preterm Lung Health Consensus Workshop

Would you like to take part in the final stages of establishing the community’s Top 10 research priorities for the lung health of people born prematurely?

The Children’s Lung Health Team at Telethon Kids Institute invite you to take part in their Consensus Workshop on 3 December at Telethon Kids Institute, Perth Children’s Hospital. At the worskhop you will be involved in selecting and ranking the Top 10 research questions/themes that were identified in the Preterm Lung Health Research Prioritisation Survey.

If you were born prematurely, care for someone born prematurely, are a family member of someone born prematurely, or are a health professional with an interest in the lung health of people born prematurely, we encourage you to be involved.

Simply register your interest in attending here:

https://curtin.au1.qualtrics.com/jfe/form/SV_6A3NthV30CCcpRc?fbclid=IwAR0mOgRQ2-Voq-Tx1jkSpYKAiC95EDLgTks4r8snFaVC5PwdrCS-NE9c0Fs

Refreshments will be provided, and travel expenses will be covered.

Thank you for considering this important opportunity.

Preparing for Prevention: assessing the community awareness of childhood respiratory infections

Want to help research into respiratory illnesses?

If you are:

• 18 and above

• Living in Australia

• Expecting a child, and/or

• A parent of a child under 5

  Our friends at the Telethon Kids Institute are looking to hear from you!

  Take part in the short (10-15 minute) survey to help researchers understand community views about respiratory illnesses in kids.

By providing your input, you’ll be helping to inform future prevention strategies to ensure that kids lead healthy, happy lives free from illness.

Thank you for helping to support this important research!

You can find the survey here: https://redcap.telethonkids.org.au/redcap/surveys/?s=JETM77NE3FWXYN44

Preterm Lung Health Priority Setting Partnership

The Children’s Lung Health Term and the Preterm Community Reference Group at the Telethon Kids Institute would like your help in selecting the 10 research priorities you think are the most important.

They want to know what you, the community, think are the most important ideas for future research into the long term lung health of babies, children, and adults born prematurely.

You can find the survey here: https://curtin.au1.qualtrics.com/jfe/form/SV_eLnkhUrH8gG8fkO

We encourage everyone eligible to participate.

Telethon Kids Institute Connect Launch

We were delighted to attend the launch of CONNECT at Telethon Kids Institute this evening.

We heard from Anne McKenzie about her vision for consumer engagement and the CONNECT program. Prof Jonathan Carapetis Executive Director explained he knew from the start how essential it is to partner with consumers. Prof Fiona Stanley shared her extensive experience connecting with consumers and how she began a SANDS group in her lounge room.

Catherine Hughes shared a consumer perspective, her story and the mutual benefit she has gained by being involved with Telethon Kids. Cath was the first to join CONNECT and sign the member agreement.

Closely followed by our Cofounder Amber. Amber contributes to Telethon Kids as Chair of the Preterm Consumer Reference Group, on the Steering Committee for the Wal-yan Respiratory Centre and in other working groups ensuring the views of the preterm community are heard. She works closely with Co-Head of the Children’s Lung Health Team Dr Shannon Simpson, pictured.

We wish to congratulate Telethon Kids on the launch of this truly incredible program and we encourage everyone interested in research to sign up. They are to be commended for their efforts to engage consumers, listen deeply and change the future so we can all raise happy, healthy kids!